I applaud your seeking opinions with your hobby colleagues. But isn’t this a conversation — rather than an email string — also to be conducted with your healthcare team of ophthalmology, endocrinology, and primary care? If their guidance is too vague or still unsettling, ask for a referral to an academic health center starting with opthalmology. All the best.
Anyone take Tepezza?
This is a question about hearing loss caused by the drug Tepezza.
I have Thyroid Eye Disease which causes vision problems, and worse makes certain movement-related conditions I have worse. I can function okay at an easy part-time job but I'm about 60% disabled and it's getting worse. A new drug for T.E.D. is available called Tepezza. It's given in 8 infusions. Only 8 are needed.
The scary thing for me as an amateur musician and music lover is that it can cause what they optimistically call "hearing problems." This includes stuffed ears from eustachian tube dysfunction (reversible after treatment concludes), but also partial or even complete hearing loss (usually at least partially reversible but sometimes permanent). About 15% of the participants in the trial had hearing problems and it seems like most were not the scary hearing loss type.
The thing is, I believe Tepezza could restore me to full employment, and it would be a miracle drug if it works for T.E.D. and creates only minor side-effects.
Between a rock and a hard place. At least I can sell my expensive audio equipment after I get the hearing aids.
Showing 3 responses by wfowenmd
Magon, it’s wise that you’ve asked about complications. Two relevant clinical citations to your concern:
All the best! |