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I can’t see how you are between a rock and a hard place. Sorry. Time to get real though, you’re sick and you have the chance to get better. Your stuff is curable and that is a HUGE plus. I have been receiving infusions every other week for the past 3 years (75 so far) for an experimental drug (non FDA approved) that will hopefully prevent the onset of one of the fatal conditions of advanced cirrhosis (cryptogenic, decompensated). My stuff is not curable and I am too old and too sick to believe in magic cures. And it’s all good. My interest in listening to music has definitely fallen off. I still buy CDs and records; I have 2 phono cartridges sitting for the past year that have not been installed. My mood and attitude have always been first rate, my focus has changed though and I am fatigued all the time. And that is what you will most likely experience, though it’s not listed as a side effect. FATIGUE, like you can’t believe. Plus you have to follow a strict (er) eating regimen, which is true for all illnesses. Helps tremendously to give up the booze, tobacco, recreational stuff ... it all affects the liver. Liver issues affect eyesight (toxins aren’t filtered as effectively). I get your nervousness and gallows style humor. But you have a way forward. Good luck. Keep me posted. Rich
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Anyone take Tepezza?
This is a question about hearing loss caused by the drug Tepezza.
I have Thyroid Eye Disease which causes vision problems, and worse makes certain movement-related conditions I have worse. I can function okay at an easy part-time job but I'm about 60% disabled and it's getting worse. A new drug for T.E.D. is available called Tepezza. It's given in 8 infusions. Only 8 are needed.
The scary thing for me as an amateur musician and music lover is that it can cause what they optimistically call "hearing problems." This includes stuffed ears from eustachian tube dysfunction (reversible after treatment concludes), but also partial or even complete hearing loss (usually at least partially reversible but sometimes permanent). About 15% of the participants in the trial had hearing problems and it seems like most were not the scary hearing loss type.
The thing is, I believe Tepezza could restore me to full employment, and it would be a miracle drug if it works for T.E.D. and creates only minor side-effects.
Between a rock and a hard place. At least I can sell my expensive audio equipment after I get the hearing aids.